Another odd month over here at chaos central. Including the house move, a couple of hospital stays, a week of feeling really poorly, and then an incredible trip to NYC. All ending with another dose of treatment! I’m starting to lose track of my life. More importantly than all of that however, is the fact …
Rich and I bought a house! What an incredible feeling. Immediately after I was diagnosed back in June, my biggest fear soon became that, in a worst case scenario, I wouldn’t have anything to leave to Nate. I also worried about having a secure and stable base for my family during what was inevitably going …
Here we go again – Monday sees the return of Immuno-Immy! I start back up with single dose infusions of Nivolumab and I’m excited. Is that odd? What feels really odd is that I drove to work this morning, after having dropped Nate off at my parents house, and realised I hadn’t yet thought about …
It has now been 7 weeks since my last immunotherapy treatment. I’ve been on a forced break due to a grade 3 severity side effect. It’s a really strange one to get your head around, as technically the side effect (in my case colitis – inflammation of the bowel) could be a positive sign of …
Something I have learnt quickly with this whole “journey” (hate that word a little bit) is that there really is no point in having a plan of what the next few days, week, month is going to look like. I started this week off feeling on top of the world, and like things were sort …
Still in hospital! Wishful thinking I would be discharged 2 days ago. It’s not all bad however, and I understand why the team are keeping me here. I’ve been analysing being an in-patient. In my lifetime, I’ve had 5 stints as an in-patient in hospital. 5 years ago during my first immunotherapy treatment with interferon, …
I had my second round of immunotherapy 6 days ago, and felt great for the first 4 days. It’s now Wednesday and on Sunday I woke up in the middle of the night feeling as though my head was literally going to explode - headache from absolute hell. Monday and Tuesday are a bit of …
I’m back in the office today after an odd couple of weeks. I ended up getting my second treatment postponed due to a wrath of side effects (primarily a pretty impressive skin rash, persistent headaches and blurry vision). I felt rubbish for a week, and was then put on a course of corticosteroids which helped …
First infusion done! I’m lucky in the sense that I sort of knew what to expect from the process – I’d had my previous treatment on the same day unit, at the same hospital, 5 years ago. I even ended up getting my infusion administered by a family friend who’s a nurse at the hospital …
I’m at the stage now where I start active treatment tomorrow! I feel oddly excited, and anxious at the same time. The results of my full body CT scan (thorax, abdomen, pelvis, neck and head) showed no further spread of disease, apart from within both of my lungs. This does still land me with a …
Immy Llew 